Who will see my personal details and data?
All study data and other personally identifiable information collected through e-TC are subject to the terms of our research participant information form. Your information will only be used for the purposes of carrying out this phase (feasibility and acceptability testing) of e-TC. As with other similar websites, automatic reminder emails will be generated and sent to your nominated email address. You will be given the option to set the timing of these reminder notifications during sign-up. The research team will only contact you by telephone:
- To gauge your interest in participating in the study (you may have already received this call)
- If you send an email request for the research team to contact you
- If you score a combination of 3 or above on the distress thermometer and 5 or above on the impact thermometer. The purpose of this phone call is to check on your well-being and refer you for further support, if needed.
Only the principal investigator and the research coordinator will have access to your personal details. The other researchers named in the participant information form will have access to all of the information you provide through the program, except your name and other personal contact details. The study results may be presented at a conference or in a scientific publication, but individual participants will not be identifiable in such a presentation.
e-TC employs banking industry security features to protect the website from security breaches. However, as with any online data collection, there is a small risk that your data will be accessed by unauthorised persons. Despite ensuring a high level of security, it not possible for us to guarantee that the security of the information you supply through the e-TC website will not be breached. You are advised to ensure that any internet connection you use to access e-TC is secure.
All data and personally identifiable information are stored in accordance with the procedures described in the research participant information form.
Limits to Confidentiality
The e-TC research team reserves the right to report to relevant authorities, such as the police or child protection authorities, situations where a client or associate of a client is judged to be at risk of self-harm, or of harming others, particularly if it the risk is to a person under 17 years of age. Researchers are also obliged to report to police certain information obtained about the commission or suspected commission of a criminal act.
Communication of Information to Others
Where the information you provide is used for the purposes of research and publication, this information will be analysed and reported in a de-identified format. The policies for the conduct of research that have been stipulated by each collaborating research institution will be strictly adhered to.
You may withdraw from further participation at any time.